{"id":7149,"date":"2023-09-21T22:25:20","date_gmt":"2023-09-21T14:25:20","guid":{"rendered":"http:\/\/www.greeneconomy.cn\/?p=7149"},"modified":"2023-09-21T22:29:56","modified_gmt":"2023-09-21T14:29:56","slug":"%e7%bd%95%e8%a7%81%e7%97%85%e7%9b%ae%e5%bd%95%e6%96%b0%e5%a2%9e86%e4%b8%aa%e7%97%85%e7%a7%8d%ef%bc%8c%e4%b8%93%e5%ae%b6%e3%80%81%e5%85%ac%e7%9b%8a%e4%ba%ba%e5%a3%ab%e5%92%8c%e6%82%a3%e8%80%85%e5%ae%b6","status":"publish","type":"post","link":"http:\/\/www.greeneconomy.cn\/index.php\/health\/2023\/09\/21\/7149\/","title":{"rendered":"\u7f55\u89c1\u75c5\u76ee\u5f55\u65b0\u589e86\u4e2a\u75c5\u79cd\uff0c\u4e13\u5bb6\u3001\u516c\u76ca\u4eba\u58eb\u548c\u60a3\u8005\u5bb6\u5c5e\u8fd9\u6837\u8bf4"},"content":{"rendered":"\n

\u3000\u30009\u670820\u65e5\uff0c\u56fd\u5bb6\u536b\u5065\u59d4\u7b49\u516d\u90e8\u95e8\u5171\u540c\u53d1\u5e03\u300a\u7b2c\u4e8c\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\u300b\uff0c\u65b0\u589e86\u79cd\u7f55\u89c1\u75c5\u3002\u52a0\u4e0a\u4e94\u5e74\u524d\u516c\u5e03\u7684\u7b2c\u4e00\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\uff0c\u76ee\u524d\u8be5\u76ee\u5f55\u5171\u6536\u5f55\u4e86207\u79cd\u7f55\u89c1\u75c5\u3002<\/p>\n\n\n\n

\u3000\u3000\u65b0\u6536\u5f5586\u79cd\u7f55\u89c1\u75c5\uff0c\u4f1a\u7ed9\u60a3\u8005\u5e26\u6765\u54ea\u4e9b\u5f71\u54cd\uff1f9\u670820\u65e5\u665a\uff0c\u6f8e\u6e43\u65b0\u95fb(www.thepaper.cn)\u91c7\u8bbf\u4e86\u5173\u6ce8\u7f55\u89c1\u75c5\u591a\u5e74\u7684\u4e13\u5bb6\u3001\u516c\u76ca\u57fa\u91d1\u4f1a\u521b\u59cb\u4eba\u548c\u8fdb\u5165\u76ee\u5f55\u7684\u7f55\u89c1\u75c5\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u60a3\u8005\u5bb6\u5c5e\u3002<\/p>\n\n\n\n

\u3000\u3000\u60a3\u8005\u5bb6\u5c5e\u559c\u6781\u800c\u6ce3<\/strong><\/p>\n\n\n\n

\u3000\u3000\u300a\u7b2c\u4e8c\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\u300b\u5171\u670986\u79cd\u7f55\u89c1\u75c5\uff0c\u5305\u62ec\u8f6f\u9aa8\u53d1\u80b2\u4e0d\u5168\u3001\u83b7\u5f97\u6027\u8840\u53cb\u75c5\u3001\u80a2\u7aef\u80a5\u5927\u75c7\u3001\u6210\u4eba\u65af\u8482\u5c14\u75c5\u3001Alagille\u7efc\u5408\u5f81\u3001\u80c3\u80a0\u95f4\u8d28\u7624\u3001\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u7b49\u3002<\/p>\n\n\n\n

\u3000\u3000\u4e94\u5e74\u591a\u524d\u76842018\u5e745\u670811\u65e5\uff0c\u56fd\u5bb6\u536b\u5065\u59d4\u7b495\u90e8\u95e8\u8054\u5408\u5236\u5b9a\u53d1\u5e03\u4e86\u300a\u7b2c\u4e00\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\u300b\uff0c\u5f53\u65f6\u5171\u6536\u5f55121\u79cd\u7f55\u89c1\u75c5\u3002\u52a0\u4e0a\u6b64\u6b21\u65b0\u589e\u768486\u79cd\u7f55\u89c1\u75c5\uff0c\u5171\u6709207\u79cd\u7f55\u89c1\u75c5\u88ab\u6536\u5f55\u7f55\u89c1\u75c5\u76ee\u5f55\u4e2d\u3002<\/p>\n\n\n\n

\u3000\u3000\u90b9\u6768\u662f\u4e00\u540d\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u5c0f\u60a3\u8005\u7684\u5988\u5988\u3002\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5(Neurofibromatosis\uff0c\u7b80\u79f0\u201cNF\u201d)\uff0c\u662f\u4e00\u5927\u7c7b\u5e38\u67d3\u8272\u4f53\u663e\u6027\u9057\u4f20\u6027\u75be\u75c5\uff0c\u4e34\u5e8a\u4e0a\u6709\u4e09\u79cd\u7c7b\u578b\uff0c\u5305\u62ecI\u578b\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5(NF1)\u3001II\u578b\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5(NF2)\u548c\u795e\u7ecf\u9798\u819c\u7624\u75c5(SN)\u3002\u5176\u4e2d\uff0cNF1\u6700\u4e3a\u5e38\u89c1\uff0c\u7d2f\u53ca\u5168\u8eab\u591a\u4e2a\u7cfb\u7edf\u3002\u81ea\u4ece\u513f\u5b50\u786e\u8bca\u4e86I\u578b\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u540e\uff0c\u90b9\u6768\u5c31\u52a0\u5165\u60a3\u8005\u7ec4\u7ec7\u6df1\u5733\u5e02\u6ce1\u6ce1\u5bb6\u56ed\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u5173\u7231\u4e2d\u5fc3\u201c\u6ce1\u6ce1\u5bb6\u56ed\u201d\uff0c\u5728\u5404\u79cd\u516c\u76ca\u6d3b\u52a8\u4e0a\uff0c\u666e\u53ca\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u77e5\u8bc6\uff0c\u63d0\u9ad8\u516c\u4f17\u7684\u8ba4\u77e5\u3002<\/p>\n\n\n\n

\u3000\u3000\u57289\u670820\u65e5\u516c\u5e03\u7684\u300a\u7b2c\u4e8c\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\u300b\u4e2d\uff0c\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u88ab\u6210\u529f\u6536\u5f55\u3002\u5f53\u5929\u4e0b\u5348\uff0c\u6b63\u5728\u5f00\u4f1a\u7684\u90b9\u6768\u770b\u5230\u8fd9\u4e00\u6d88\u606f\u540e\uff0c\u54ed\u4e86\u8d77\u6765\u3002\u201c(\u6fc0\u52a8\u5730)\u62cd\u684c\u5b50\u4e86\uff0c\u771f\u7684\u662f\u559c\u6781\u800c\u6ce3\u2026\u2026\u8fd9\u4e2a\u4e8b\u513f\u5bf9\u6211\u4eec\u6765\u8bf4\u592a\u671f\u76fc\u5df2\u4e45\u2026\u2026\u975e\u5e38\u60ca\u559c\u3002\u201d<\/p>\n\n\n\n

\u3000\u3000\u90b9\u6768\u5766\u8a00\uff0c\u4ed6\u4eec\u4e00\u76f4\u671f\u5f85\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\u80fd\u8fdb\u5165\u7f55\u89c1\u75c5\u76ee\u5f55\uff1b\u6b64\u524d\u4ed6\u4eec\u4e5f\u731c\u6d4b\uff0c\u5982\u679c\u80fd\u8fdb\u5165\u76ee\u5f55\uff0c\u53d1\u75c5\u7387\u6700\u9ad8\u7684NF1\u53ef\u80fd\u6027\u6700\u5927\u3002<\/p>\n\n\n\n

\u3000\u3000\u201c2\u578b\u548c\u795e\u7ecf\u9798\u819c\u7624\u75c5\u592a\u5c0f\u4f17\u4e86\u3002\u4eca\u5929\u77e5\u9053\u662f\u6574\u4e2a\u795e\u7ecf\u7ea4\u7ef4\u7624\u75c5\uff0c\u6ca1\u6709\u5206\u4e9a\u578b\uff0c\u8fd9\u4e2a\u75c5\u79cd\u90fd\u8fdb\u4e86\u76ee\u5f55\u3002\u201d\u90b9\u6768\u79f0\uff0c20\u65e5\u4e0b\u5348\uff0c\u60a3\u8005\u7ec4\u7ec7\u548c\u5bb6\u5c5e\u7fa4\u91cc\u90fd\u4e92\u76f8\u8f6c\u544a\u8fd9\u4e2a\u597d\u6d88\u606f\u3002<\/p>\n\n\n\n

\u3000\u3000\u5979\u8fd8\u8bf4\uff0c\u76ee\u524d\u56fd\u5185\u4e5f\u5df2\u7ecf\u6709\u4e86\u6cbb\u7597\u7684\u836f\u7269\uff0c\u8be5\u75c5\u8fdb\u5165\u76ee\u5f55\u540e\uff0c\u6216\u8bb8\u80fd\u4e00\u5b9a\u7a0b\u5ea6\u4e0a\u63d0\u9ad8\u836f\u7269\u7684\u53ef\u53ca\u6027\u3002<\/p>\n\n\n\n

\u3000\u3000\u76f8\u4fe1\u8fd8\u4f1a\u6709\u66f4\u591a\u6279\u6b21\u7684\u76ee\u5f55\u53d1\u5e03<\/strong><\/p>\n\n\n\n

\u3000\u30009\u670820\u65e5\u665a\uff0c\u75c5\u75db\u6311\u6218\u516c\u76ca\u57fa\u91d1\u4f1a\u521b\u59cb\u4eba\u3001\u75c5\u75db\u6311\u6218\u516c\u76ca\u57fa\u91d1\u4f1a\u521b\u59cb\u4eba\u738b\u5955\u9e25\u5411\u6f8e\u6e43\u65b0\u95fb\u8868\u793a\uff0c\u8fd1\u51e0\u5e74\uff0c\u60a3\u8005\u3001\u5bb6\u5c5e\u548c\u60a3\u8005\u7ec4\u7ec7\u7b49\u4e00\u76f4\u671f\u5f85\u7740\u300a\u7b2c\u4e8c\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\u300b\uff0c\u56e0\u4e3a\u76ee\u5f55\u4f1a\u7ed9\u6d89\u53ca\u7684\u7f55\u89c1\u75c5\u60a3\u8005\u5e26\u6765\u66f4\u591a\u7684\u5173\u6ce8\u548c\u63a8\u52a8\u3002\u6bd4\u5982\uff0c\u75be\u75c5\u7684\u7b5b\u67e5\u3001\u8bca\u65ad\u548c\u6cbb\u7597\uff0c\u7edf\u4e00\u5b8c\u5584\u7684\u8bca\u7597\u6307\u5357\u548c\u624b\u518c\uff0c\u5bf9\u533b\u751f\u7684\u57f9\u8bad\u7b49\u3002\u6b64\u5916\uff0c\u8fd8\u6709\u53ef\u80fd\u63a8\u52a8\u6709\u6cbb\u7597\u836f\u7269\u7684\u75be\u75c5\u66f4\u5feb\u8fdb\u5165\u533b\u4fdd\u62a5\u9500\u8303\u7574\uff0c\u8fdb\u5165\u5730\u65b9\u4fdd\u969c\u4f53\u7cfb\u3001\u6148\u5584\u6551\u52a9\u6216\u5546\u4e1a\u666e\u60e0\u9669\u7684\u4fdd\u969c\u8303\u56f4\u7b49\u3002<\/p>\n\n\n\n

\u3000\u3000\u738b\u5955\u9e25\u8bf4\uff0c\u5bf9\u4e8e\u66f4\u591a\u5c1a\u672a\u8fdb\u5165\u76ee\u5f55\u7684\u7f55\u89c1\u75c5\uff0c\u547c\u5401\u793e\u4f1a\u80fd\u6709\u66f4\u591a\u7684\u529b\u91cf\u7ed9\u4e88\u60a3\u8005\u5176\u4ed6\u65b9\u5f0f\u7684\u9f13\u52b1\u3001\u652f\u6301\u548c\u4fdd\u969c\uff0c\u5c24\u5176\u662f\u90a3\u4e9b\u6ca1\u6709\u6709\u6548\u6cbb\u7597\u836f\u7269\u7684\u75be\u75c5\uff0c\u5e0c\u671b\u4e0d\u8981\u56e0\u4e3a\u6ca1\u6709\u8fdb\u5165\u76ee\u5f55\u800c\u88ab\u5ffd\u89c6\u3002<\/p>\n\n\n\n

\u3000\u3000\u5173\u6ce8\u7f55\u89c1\u75c5\u591a\u5e74\uff0c\u4efb\u5317\u4eac\u533b\u5b66\u4f1a\u7f55\u89c1\u75c5\u5206\u4f1a\u4e3b\u4efb\u59d4\u5458\u7b49\u591a\u9879\u804c\u52a1\u7684\u5317\u4eac\u5927\u5b66\u7b2c\u4e00\u533b\u9662\u539f\u526f\u9662\u957f\u3001\u6559\u6388\u4e01\u6d01\u5766\u8a00\uff0c2018\u5e745\u6708\u516c\u5e03\u7684\u300a\u7b2c\u4e00\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\u300b\uff0c\u5177\u6709\u91cc\u7a0b\u7891\u7684\u610f\u4e49\uff0c\u662f\u4ece0\u52301\u7684\u7a81\u7834\u3002\u7ecf\u8fc7\u8fd9\u51e0\u5e74\u7684\u5546\u8ba8\uff0c\u516c\u5e03\u7b2c\u4e8c\u627986\u79cd\u7f55\u89c1\u75c5\uff0c\u4e5f\u5177\u6709\u91cd\u8981\u610f\u4e49\uff0c\u76f8\u4fe1\u4ee5\u540e\u8fd8\u4f1a\u6709\u66f4\u591a\u6279\u6b21\u7684\u76ee\u5f55\u53d1\u5e03\u3002<\/p>\n\n\n\n

\u3000\u3000\u4e0e\u6b64\u540c\u65f6\uff0c\u4e01\u6d01\u4e5f\u8868\u793a\uff0c\u6b64\u6b21\u516c\u5e03\u768486\u79cd\u7f55\u89c1\u75c5\uff0c\u4e0e\u56fd\u9645\u4e0a\u8ba4\u53ef\u7684\u7f55\u89c1\u75c5\u79cd\u6570\u91cf\uff0c\u4ecd\u6709\u8f83\u5927\u7684\u5dee\u8ddd\u3002<\/p>\n\n\n\n

\u3000\u3000\u5979\u4ecb\u7ecd\uff0c\u5728\u5168\u56fd\u7f55\u89c1\u75c5\u5b66\u672f\u7ec4\u7ec7\u4e3b\u59d4\u8054\u5e2d\u4f1a\u8bae\u7ec4\u7ec7\u9886\u5bfc\u4e0b\uff0c\u533b\u7597\u3001\u533b\u836f\u3001\u533b\u4fdd\u3001\u533b\u653f\u7b49\u65b9\u9762\u7684\u5f88\u591a\u4e13\u5bb6\uff0c\u7528\u4e00\u5e74\u591a\u65f6\u95f4\u7814\u8ba8\uff0c\u6700\u7ec8\u7531\u5168\u56fd\u7f55\u89c1\u75c5\u5b66\u672f\u7ec4\u7ec7\u4e3b\u59d4\u8054\u5e2d\u4f1a\u8bae\u738b\u7433\u6559\u6388\u64b0\u5199\u5e76\u53d1\u5e03\u4e86\u201c\u4e2d\u56fd\u7f55\u89c1\u75c5\u5b9a\u4e49\u7814\u7a76\u62a5\u544a\u201d\u3002\u8fd9\u4e2a\u5b9a\u4e49\u57fa\u4e8e\u4e13\u5bb6\u8ba8\u8bba\u4ee5\u53ca\u56fd\u5185\u7684\u76f8\u5173\u6570\u636e\uff0c\u6709\u4e09\u4e2a\u7ef4\u5ea6\uff1a\u4e00\u662f\u65b0\u751f\u513f\u7684\u53d1\u75c5\u7387\u5c0f\u4e8e\u4e07\u5206\u4e4b\u4e00\uff1b\u6216\u60a3\u75c5\u7387\u5c0f\u4e8e\u4e07\u5206\u4e4b\u4e00\uff1b\u6216\u5355\u75c5\u79cd\u60a3\u75c5\u4eba\u6570\u5c0f\u4e8e14\u4e07\u3002\u7b26\u5408\u5176\u4e2d\u4e00\u4e2a\u6761\u4ef6\uff0c\u5c31\u88ab\u8ba4\u5b9a\u4e3a\u7f55\u89c1\u75c5\u3002<\/p>\n\n\n\n

\u3000\u3000\u4e01\u6d01\u79f0\uff0c\u8fd9\u4e00\u5b9a\u4e49\u88ab\u8d8a\u6765\u8d8a\u591a\u7684\u4e13\u5bb6\u8ba4\u53ef\u3002\u5728\u5bf9\u7f55\u89c1\u75c5\u7684\u8bca\u7597\u652f\u6301\u548c\u4fdd\u969c\u65b9\u9762\uff0c\u4e00\u4e9b\u672a\u8fdb\u5165\u76ee\u5f55\u7684\u7f55\u89c1\u75c5\uff0c\u6216\u53ef\u4ee5\u7528\u8fd9\u4e00\u5b9a\u4e49\u6765\u7ed9\u4e88\u4fdd\u969c\u3002<\/p>\n","protected":false},"excerpt":{"rendered":"

\u3000\u30009\u670820\u65e5\uff0c\u56fd\u5bb6\u536b\u5065\u59d4\u7b49\u516d\u90e8\u95e8\u5171\u540c\u53d1\u5e03\u300a\u7b2c\u4e8c\u6279\u7f55\u89c1\u75c5\u76ee\u5f55\u300b\uff0c\u65b0\u589e86\u79cd\u7f55\u89c1\u75c5\u3002\u52a0\u4e0a\u4e94\u5e74\u524d\u516c\u5e03\u7684\u7b2c\u4e00\u6279\u7f55\u89c1\u75c5 […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[153,33],"tags":[3500,9380,9381,9382,9383,9384,9385],"acf":[],"_links":{"self":[{"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/posts\/7149"}],"collection":[{"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/comments?post=7149"}],"version-history":[{"count":4,"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/posts\/7149\/revisions"}],"predecessor-version":[{"id":7154,"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/posts\/7149\/revisions\/7154"}],"wp:attachment":[{"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/media?parent=7149"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/categories?post=7149"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.greeneconomy.cn\/index.php\/wp-json\/wp\/v2\/tags?post=7149"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}